The movie Extraordinary Measures opens this weekend! So, go ahead and get a babysitter now. I have blogged about this movie before, but for a quick refresher, it is based on a true story about our friends John and Aileen Crowley. Mark worked with John at Amicus in NJ and Aileen and I became good friends and of course we love the kids, Megan, Patrick and John Jr. We love this family and are so excited that their inspiring story will be told and more importantly, bring much needed attention to Pompe disease and the need to find a treatment.
Here is a clip featuring the real John and Aileen Crowley. I promise that after you see this, you will want to see the movie.
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